Post by kmcm on Dec 13, 2010 21:54:57 GMT -8
My turn to whine.
I have a love/hate relationship with winter. I LOVE the rainy, overcast, "dreary" days of winter here in Washington State. As some of you know, sunshine is one of my main triggers for migraines ( i get the nasty ones, sensitivity to light, sound, movement, touch, puking, etc) So this time of year makes me happy be cause it's dark and cloudy.
Unfortunately, this is also the season that the barometric pressure goes wacko. Any change in the pressure up or down causes a chain reaction with me. Pressure goes up, my leg starts to spasm which pisses off my back. Pressure goes down, my back spasms which pisses off my leg.
This new nerve pain that i am dealing with is not getting any better. (new as in i damaged the nerve enough to piss it off in March most everything else has been going on since 1995)
I do have an appointment with the University of Washington pain clinic on Friday, but i'm fairly pessimistic about it. I feel like i've been to bunches and bunches of doctors that don't do anything besides "well, you seem to have it somewhat under control with the meds you are taking, keep taking them" I dont WANT things to be "under control" i want to get better!
I'm cranky, i feel like crying all the time, and i'm tired of only being able to fucking wear flip-flops cause anything else touching my damned foot hurts so bad i want to chop it off. I want to wear jeans again, only being able to wear fleece pants or supersoft fabrics or short skirts is not fair.
I hate that every medication we try makes me ill. So we've found a few that work, but i've built a tolerance. I take 2x per day: 8mgs of Dilaudid (hydromorphone), 20 mgs of Flexeril (cyclobenzaprine), and we have added in 10 mgs of Valium.
None of this makes me tired. Every single one of my meds says that "May cause drowsiness" but i'm awake all night. I roll over and it hurts, i breathe wrong and it hurts.
My left foot is becoming paralyzed. i can't lift it up, it's part of the nerve damage. i can point my toes like a ballerina, but can't lift my toes off the floor. There is a treatment for this to prevent it from getting any worse, but i can't do it, because it requires a brace and i can't tolerate any pressure on that damned foot.
Fucking A. Damn, i feel better now. I'm so glad you people encouraged me to make this board.
I love you all.
I have a love/hate relationship with winter. I LOVE the rainy, overcast, "dreary" days of winter here in Washington State. As some of you know, sunshine is one of my main triggers for migraines ( i get the nasty ones, sensitivity to light, sound, movement, touch, puking, etc) So this time of year makes me happy be cause it's dark and cloudy.
Unfortunately, this is also the season that the barometric pressure goes wacko. Any change in the pressure up or down causes a chain reaction with me. Pressure goes up, my leg starts to spasm which pisses off my back. Pressure goes down, my back spasms which pisses off my leg.
This new nerve pain that i am dealing with is not getting any better. (new as in i damaged the nerve enough to piss it off in March most everything else has been going on since 1995)
I do have an appointment with the University of Washington pain clinic on Friday, but i'm fairly pessimistic about it. I feel like i've been to bunches and bunches of doctors that don't do anything besides "well, you seem to have it somewhat under control with the meds you are taking, keep taking them" I dont WANT things to be "under control" i want to get better!
I'm cranky, i feel like crying all the time, and i'm tired of only being able to fucking wear flip-flops cause anything else touching my damned foot hurts so bad i want to chop it off. I want to wear jeans again, only being able to wear fleece pants or supersoft fabrics or short skirts is not fair.
I hate that every medication we try makes me ill. So we've found a few that work, but i've built a tolerance. I take 2x per day: 8mgs of Dilaudid (hydromorphone), 20 mgs of Flexeril (cyclobenzaprine), and we have added in 10 mgs of Valium.
None of this makes me tired. Every single one of my meds says that "May cause drowsiness" but i'm awake all night. I roll over and it hurts, i breathe wrong and it hurts.
My left foot is becoming paralyzed. i can't lift it up, it's part of the nerve damage. i can point my toes like a ballerina, but can't lift my toes off the floor. There is a treatment for this to prevent it from getting any worse, but i can't do it, because it requires a brace and i can't tolerate any pressure on that damned foot.
Fucking A. Damn, i feel better now. I'm so glad you people encouraged me to make this board.
I love you all.